Sunday, October 4, 2009
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Dear friends,
We are asking you on behalf of our daughter Heather as well as all the girls who can not speak for themselves , to please help us recognize New Jersey Rett Syndrome Awareness Day on October 20, 2009.
Wear something purple.
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SUPPORT NJRSA WITH YOUR HOLIDAY SHOPPING |
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This holiday season, help raise money for New Jersey Rett Syndrome Association through your everyday purchases at brand name stores such as Target, Barnes & Nobles, Overstock and Macys. In addition, you'll save money with exclusive coupons, free shipping offers, and limited-time sales.
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Our next event is sponsored by the Hoboken Police PBA. Comedy night 2009, Sat. Oct 17, at the Our Lady of Grace Bingo Hall, 100 Willow Ave. Hoboken.
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RETTLAND - FAMILY WINTER RETREAT |
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IRSF NATURAL HISTORY FAMILY CLINICS, FEBRUARY & AUGUST |
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Saturday-Sunday February 6-7, 2010 and tentativly July 31-Aug.1, 2010
IRSF Natural History of Rett Syndrome Clinic in New Brunswick
89 French St., New Brunswick, NJ 08901
for directions visit http://rwjms.umdnj.edu/chinj/directions.htm
Thank you to the Child Health Institute at UMDNJ Robert Wood Johnson Medical School for hosting our clinic!
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LAWNMOWER TRACTOR RACE, JUNE |
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Ladies and Gentlemen:
ON YOUR MARK, GET SET...LET'S MOW!
What a FUN FAMILY DAY at our LAWNMOWER TRACTOR RACE.
Thank you to the Riegelman familiy for organizing this unique, fun day of fund-raising!
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ANNUAL FAMILY PICNIC, AUGUST |
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A great time was had by all at the Annual Family Picnic.
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ANNUAL SILENT ANGELS GALA, MARCH |
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The annual Silent Angels Gala, dinner dance and silent auction continues to be our biggest event of the year. Save the date and plan to join us for the 18th annual gala on March 6, 2010 back at the beautiful Westmount Country Club, West Paterson NJ. www.westmountcountryclub.com
With your help we were able to raise over $95,000.00 at our gala on March 28, 2009 at Twin Brooks Country Club in Watchung. We thank everyone for thier continued support and look forward to another successful event.
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Rett Syndrome Awareness Day in the State of New Jersey |
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New Jersey Rett Syndrome Association (NJRSA) - Here in NJ, Governor Jon Corzine signed the bill that established the 3rd Tuesday of every October as Rett Syndrome Awareness Day.
Rett Syndrome awareness is an opportunity to educate people on the leading genetic cause of severe impairment in girls. We hope you will join us in efforts to raise awareness about Rett syndrome and support the efforts that are in place to facilitate Rett syndrome research and advancements on a search for a cure and treatments.
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