OCTOBER IS RETT SYNDROME AWARENESS MONTH

 

In Jan. 2007 Gov. Jon Corzine joined us at the Natural History Clinic in New Brunswick to sign the Rett Syndrome Awareness bill, declaring the third Tuesday of each October as Rett Syndrome Awareness Day in NJ.

On Monday October 27, 2008 Robin Turner---our BEST Rett Syndrome Advocate---made it possible for us to be ON THE FLOOR of the NJ State Assembly in Trenton for a formal resolution for Rett Syndrome Awareness. We had 10 of our girls on the floor, in front of the full Assembly for a reading of the formal resolution declaring Rett Syndrome Awareness Day in NJ. It was a great way for us to put the faces of RTT in front of our legislators. They will not forget us!

We hope to have another day in Trenton this fall, watch the website for info to follow.